Meet the Team

Executive Director


Director of Programming

Stephanie Hoban Cook brings a wealth of knowledge and experience to this position along with a proven dedication to the DSA-GC and educating children with Down syndrome. Her years on the Board of the DSA-GC, the Planning Committee for the Down Syndrome Education (DSE) Conference in 2010, and her attendance at that DSE conference have given her an incredible knowledge base about children with Ds and how they learn best.

Board of Directors


President - Chris Coggins

(daughter, Avery)

Vice President, Programming - Melina Deleon

Vice President, Fund Development - Andrew Spafford

Vice President, Community Engagement - Ernie Hoag
(daughter, Lily)

Treasurer - Crystal Garrett

Secretary - Sara Weiss
(son, Ben)


Brendan Hammeke

Melissa Thomason

(son, Welles)

Shana Filkins
(daughter, Zoey)

  • 10/18/2014 -- 1st Buddy Walk for Down Syndrome Awareness at UNCC ... Read More
  • 03/09/2015 -- Dash for Down Syndrome Helps CMS Serve Students wi ... Read More
  • 03/01/2016 -- March 19 event to include 1,200 participants for 5 ... Read More
  • Down syndrome Charlotte