General Resources


Summer 2017

Download the Newsletter

In this issue:

  • DSA-GC 2017 Symposium Presented by Kathleen Whitbread, Ph.D.
  • 2017 Staff and Board Member Directory
  • Thanks to our Sponsors
  • Groups and Announcements
  • DSA-GC Summer Picnic, July 23, 3 – 6 pm at William R. Davie Park Center
  • Town Hall Meeting
  • Dream on 3 Event at Kannapolis Intimidators, July 23, 5 pm
  • Change in DSA-GC Office Hours
  • Check Out DSA-GC on YouTube
  • Buddy Walk, Saturday, October 14th, Jerry Richardson Stadium at UNC Charlotte
  • Buddy Walk Photo Sign Challenge
  • DSA-GC 2017 Symposium, Educator Day, Sept 22 at Holiday Inn Charlotte-Center City
  • DSA-GC 2017 Symposium, Parent Day, Sept 23 at Holiday Inn Charlotte-Center City
  • Exceptional Nannies
  • Five Things You Need to Know About ABLE Accounts
  • 3-2-1 DASH for Down Syndrome Recap
  • DSA-GC Annual Golf Tournament Recap
  • Panthers Play 60 Camp Recap
  • DSA-GC Camp Holiday Update
  • All You Need is Love – Sydney LoPour

Achieving a Better Life Experience (ABLE)

ABLE Act Overview

The Achieving a Better Life Experience (ABLE) Act of 2013 (S. 313/H.R.647) was introduced in the 113th Congress by a bipartisan, bicameral set of Congressional Champions including Sens. Robert Casey, Jr., (D-PA) and Richard Burr (R-NC), and Reps. Ander Crenshaw (R-FL), Chris Van Hollen (D-MD), Cathy McMorris Rodgers (R-WA), and Pete Sessions (R-TX). 

The ABLE Act would amend Section 529 of the Internal Revenue Service Code of 1986 to create tax-free savings accounts for individuals with disabilities. The bill aims to ease financial strains faced by individuals with disabilities by making tax-free savings accounts available to cover qualified expenses such as education, housing, and transportation. The bill would supplement, but not supplant, benefits provided through private insurances, the Medicaid program, the supplemental security income program, the beneficiary’s employment, and other sources.

An ABLE account could fund a variety of essential expenses for individuals, including medical and dental care, education, community based supports, employment training, assistive technology, housing, and transportation. The ABLE Act provides individuals with disabilities the same types of flexible savings tools that all other Americans have through college savings accounts, health savings accounts, and individual retirement accounts. The legislation also contains Medicaid fraud protection against abuse and a Medicaid pay-back provision when the beneficiary passes away. It will eliminate barriers to work and saving by preventing dollars saved through ABLE accounts from counting against an individual’s eligibility for any federal benefits program.

- Thank you to National Down Syndrome Society Legislative Agenda for providing the above overview content.

National Down Syndrome Society

ABLE (Achieving a Better Life Experience) National Resource Center

The Arc: "ABLE Act is Now Law"

Disability Scoop: "Obama Signs ABLE Act"

The Wall Street Journal: "A New Savings Plan for the Disabled"

North Carolina Health and News: "Act Allows People with Disabilities to be More Able"

Estate Planning

An Important Step for Your Child's Future

Start thinking about your financial future and how you can support your whole family, including an individual with Down syndrome. Below you will find links to some well-written articles to help you start down this path. 

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